When I was 21 I had just finished my second year at Uni studying to be a primary school teacher, which is a career I have always dreamed of achieving. However, during my summer break in August 2017, my world turned upside down when I was diagnosed with an incredibly rare and aggressive cancer called Alveolar Rhabdomyosarcoma, stage 4.

The symptoms were so minimal (agonising back and leg pain) it had made its way around my full body by the time I was diagnosed. Since then I have undergone over 20 cycles of chemotherapy, 50 sessions of radiotherapy and numerous operations to try and stabilise my disease.

I have always dreamed of achieving. However, during my summer break in August 2017, my world turned upside down when I was diagnosed with an incredibly rare and aggressive cancer called Alveolar Rhabdomyosarcoma, stage 4. The symptoms were so minimal (agonising back and leg pain) it had made its way around my full body time I was diagnosed. Since then I have undergone over 20 cycles of chemotherapy, 50 sessions of radiotherapy and numerous operations to try and stabilise my disease.

 

After endless hours and incredibly late nights of research, we have found that the USA have a trial drug available which works alongside my current chemotherapy.

Anarkoli Disco Cali

Founder,Anarkoli Co.

The symptoms were so minimal (agonising back and leg pain) it had made its way around my full body by the time I was diagnosed. Since then I have undergone over 20 cycles of chemotherapy, 50 sessions of radio therapy and numerous operations to try and stabilise my disease. We have now been told that I have stopped responding to the few drugs available for Sarcoma. After endless hours and incredibly late nights of research, we have found that the USA have a trial drug available which works alongside.